Introduction to RSRF

The RSRF was founded in late 1999 by a small but passionate group of parents who were concerned by the lack of research being conducted on Rett Syndrome. Monica Coenraads, Wendy Friedman, Cory Henkel, Anna Luce, Gordon Rich and Jeanne Sinclair were confident that an organization focused aggressively and exclusively on biomedical research would accelerate the discovery of treatments and a cure for this devastating disorder.

Today RSRF is the world's leading private funder of Rett research. In the last five years RSRF has funded 104 projects at premiere institutions totaling over

$11 million. Furthermore, RSRF organizes the only annual scientific meeting devoted to Rett Syndrome. Each June RSRF convenes over 100 researchers and clinicians from around the world for a three day Rett Syndrome symposium

As a volunteer driven organization RSRF has raised millions since our inception. The foundation has proven to be fiscally responsible by directing 97% of each dollar donated directly to program services.

No one is more motivated to find treatments and a cure for Rett than parents whose children are suffering. With prominent researchers around the world now focusing on the disorder, leading scientists serving as Foundation advisors, and a strongly committed Board of Trustees and staff, RSRF is confident that its vision will be realized.

Our Vision
RSRF's vision is a cure for Rett Syndrome.

Our Mission
RSRF's mission is to fund, promote and accelerate biomedical research for the treatment and cure of Rett Syndrome.